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My Endometriosis Journey…

“Your daughter has Endometriosis.” The day I found out that I had my disorder was a life altering moment. I had gotten my period at 12 and for the first year it was pretty normal. But as I got older in age, it became extremely aggressive. I would bleed for weeks, my legs would go numb, I even threw up so much it was stomach acid coming up. After being hospitalized several times, my mother became concerned and decided to figure this out. I was told I had really bad periods (dysmenorrhea), then I was told PCOS (Polycystic Ovarian Syndrome) and was giving some birth control and sent on my way. And it got worse.

After two years of struggling, after my 15th birthday, everything changed. One day, I had gotten so sick I got stuck in the tub and my Aunt had to physically come and get me out. When I arrived to the hospital, my doctor did an ultrasound on me and told my mom that she was referring us to an OBGYN who specialized in “special cases like mine” and that’s when I found out about Endometriosis.

For those who don’t know, Endometriosis is an often-painful disorder in which tissue similar to the tissue that normally lines the inside of your uterus — the endometrium — grows outside your uterus. Endometriosis most commonly involves your ovaries, fallopian tubes and the tissue lining your pelvis.

And at 15, that is a lot to deal with. They never tell you about the mental and emotional trauma that comes with this. I was constantly poked and prodded at like a little lab rat for their experiments. My hormones were all over the place so I was constantly having crazy mood swings, often depressive, and wouldn’t eat. I was sad, and in most cases, I just wanted to crawl up and die (I had a moment a few years ago that was dark, but I am better now.)

As an adult now, I am learning to not allow my disorder to take over my life like it did in my teen and early 20s. And now that I am in a relationship, there are certain decisions that we have to make that could affect our lives and our future children’s lives (Blog coming soon about that.) But I refuse to allow this to take over me.

I am still in a love hate relationship with this Endo, and I have highs and lows. It is such a weird thing to say that I have been surviving and thriving with Endometriosis for the last 14 years, but it is been a wild ride. And I wouldn’t change it for the world.

Your journey is yours alone, so make it beautiful.

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